Guest Post: Alyssia’s More Than Ordinary Life

I am incredibly grateful to Zoe at Mummy & Liss for sharing her family’s story with us. Please do pop over and take a look at her fantastic blog. I know many of you will relate to this story.

When did you first realise that your child had a medical condition?

From birth Alyssia had eczema but I didn’t notice that it was a big problem until she was around 4 weeks old. For the first 2 weeks of Alyssia’s life she was breastfed, as a first time mum I didn’t know anything about allergies in babies or what to expect. I stopped breastfeeding at 2 weeks because it hurt so bad, but after we switched Alyssia to formula she started to get really unsettled and started to wake up screaming in pain. After speaking to a health visitor, they suggested changing her onto comfort milk as this was known to be easier to digest however that didn’t work for her and if anything, made things worse. At 6 weeks old we made the decision that enough was enough, I hadn’t slept a full nights sleep in what felt like forever and I needed some answers. We went to the doctors who suggested that we used Gripe water & infacol which again, did nothing.

What were your biggest worries in those early days?

Luckily we found out that Alyssia had a dairy allergy when she was just 3 months old, however I didn’t yet know that she was also allergic to soya products. When Alyssia was around 8 months old, she had an alpro soya yoghurt for pudding – she only had a few mouthfuls and within minutes her face and eyes had swollen up. It was so scary and since, we have noticed that with each reaction she has, not only does she get an eczema rash but the main symptom for her having a reaction is the swelling of her eyes.

Does you child have a formal diagnosis?

Yes, at 3 months old we took Alyssia back to the GP who then diagnosed her with CMPA (Cows Milk Protein Allergy). After changing over to a specialist milk, she was like a different baby – much happier and more content. Until at 5 & half months old, Alyssia started to refuse her milk and was going to sleep hungry. I couldn’t help but feel like an awful parent, so again I took her back to the GP for some advice.

What kind of support did/ does your child receive?

We got lots of support from the Health Visitors, GP’s and were then referred to a paediatric dietician who then gave us a step by step plan as to what to do to start introducing cows milk and soya into her diet. We saw the dietician when Alyssia was around 10 months old I think. We were advised to wait until she hit 1 years old and then to introduce dairy into her diet however due to her being so poorly after her 1 year jabs, and her reacting to different foods, she is now 16 months old and we still haven’t taken the big leap. If I’m honest, I’m quite scared but I know she’ll be fine.

What accomplishment of your child’s are you most proud of?

I am so proud of how far Alyssia has come, she has taught me how to be strong and I have learnt so much about CMPA since having A. I am so proud of the fact that at birth up until 10 months old – Alyssia had awful eczema and was very unsettled. At 1 years old, we swapped her formula for Goats Milk and although she hated the change at first – she is now 16 months old and has a full bottle of warm goats milk before bed every night. She very rarely suffers from eczema now and although we haven’t yet challenged her on anything more than a biscuit with dairy in, she has come so far and achieved so much already.

What do you know now that you wish you had known in the early days?

I wish I had known more about it, if I’m completely honest with you.. before having Alyssia I didn’t even know what CMPA even meant. I wish I had known what to look out for and what to do if it does happen to you. When Alyssia was newborn I didn’t even notice her eczema but looking back – the difference in her skin is incredible and if she has ever eaten anything that she shouldn’t have – I know straight away. Another thing I wish I had known about, was how hard it would be to wean a baby with CMPA. It is always scary taking Alyssia out for lunch anywhere, because it is guaranteed that almost everything will have milk in and I’ll have to take my own food for her.

What advice would you have for a parent whose child has just received a new diagnosis?

My advice to new parents would be to trust your instincts.. if you think something is wrong – don’t let the doctors turn you away until you get an answer. It took 3 months to finally get a diagnosis and it was later confirmed for sure at 8 months old when she reacted so badly to a soya yoghurt. Trust your instincts and remember that you’re not alone, there are so many people out there who can help you. We met with a dietician when Alyssia was 10 months old and she was incredibly helpful alongside our HV’s.

Where can people find out more about you and your story?

Blog: www.mummyandlissblog.com

Twitter: https://twitter.com/mummyandliss_

Facebook: www.facebook.com/mummyandlissblog

Instagram: https://www.instagram.com/mummyandliss/?hl=en

 

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18 Comments

  1. Reply

    Devon Mama

    June 16, 2017

    Sometimes I think an allergy must be one of the hardest things to deal with because it’s so all encompassing and difficult to know what will upset it. Glad to hear she’s enjoying her goats milk, fingers crossed she outgrows it completely! x

    • Reply

      Mummy Times Two

      June 18, 2017

      I totally agree, allergies can be so hard to deal with x

  2. Reply

    Musings of a tired mummy...zzz...

    June 16, 2017

    Allergies are scary. I have oral allergy syndrome to fruit and my children have all inherited it. Luckily they haven’t got my wheat allergy too! I have grown INTO my allergies but I’m hoping the children will grow out of them in the same way I grew out of hayfever

    • Reply

      Mummy Times Two

      June 18, 2017

      Fingers crossed, we have lots of allergies here too and I hope the same x

  3. Reply

    Babies and Beauty

    June 16, 2017

    Well done for chasing it, sometimes doctors fob us off and we feel a bit crazy for chasing them up but you were right to do so!

    • Reply

      Mummy Times Two

      June 18, 2017

      So very true x

  4. Reply

    Deb

    June 16, 2017

    Sounds like it’s been a tough time. X

    • Reply

      Mummy Times Two

      June 18, 2017

      Mum is so incredibly positive though, such an incredible lady x

  5. Reply

    Mummy Cat

    June 17, 2017

    Having a child with an allergy such as lactose or dairy is tough, my eldest two both had some form of it, my son was lactose intolerant and my daughter had a dairy allergy, they just never prepare you for it, thankfully both grew out of it and baby 3 has no sign of it! There is always hope x

    • Reply

      Mummy Times Two

      June 18, 2017

      So glad both of yours grew out of it x

  6. Reply

    Jeannette @autismmumma

    June 17, 2017

    Well done for trusting your instincts, my children have a latex allergy which makes cute & grazes “fun” as plasters – even hypo-allergenic ones are out.
    Good that she’s now enjoying goats milk.

    • Reply

      Mummy Times Two

      June 18, 2017

      Instincts really are so important, aren’t they? X

  7. Reply

    Isabella

    June 18, 2017

    Allergies are one of the worst new parent nightmares to deal with. Don’t beat yourself so hard over it, you’re doing great dealing with it so far. Loved this post

    • Reply

      Mummy Times Two

      June 18, 2017

      They really are so touch. I totally agree, she is doing a fantastic job x

  8. Reply

    Madeeha

    August 20, 2017

    Food allergies are scary. My cousin has allergy from honey when he was toddler and his mother didn’t know. It was difficult to figure it out especially when honey was in disguise in food. That poor lad had some terrible days. Glad this young lady is doing well now.

    • Reply

      Mummy Times Two

      August 20, 2017

      They really can be x

  9. Reply

    Emma King

    August 31, 2017

    My now 4 year old son had CMPI. It was hell on earth until he was diagnosed at 18 weeks. I’m a health visitor & recognise the symptoms in lots of babies I see. I’m so glad you got the support you needed.

    • Reply

      Mummy Times Two

      September 8, 2017

      It really is so hRd until you know what’s going on x

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